The Youth Rally Committee creates a community for young people with rare medical conditions to bond over shared experiences, learn about symptom management, and find relief from the sense of alienation that accompanies these rare conditions. Kids aged 11–17 with bowel and bladder disorders such as ulcerative colitis, Crohn’s disease, and cancers of the bowel or bladder come together once a year for a weeklong rally on a college campus. During their stay, they take part in outdoor games and off-campus trips to local museums, and learn how to manage their conditions with activities overseen by nurses and counselors who also have similar conditions. Counselor skits and a camp dances relieve stress in the evenings, while off-campus events promote medical self-management in a public setting.
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