Hannah's Hope Fund

19 Blue Jay Way, Rexford, NY 12148 Directions
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Lori and Matt Sames founded Hannah’s Hope Fund (HHF) in 2008 when their 4-year-old daughter was diagnosed with giant axonal neuropathy (GAN). They set up an office at their kitchen table to raise funds to help treat and cure GAN. Over time, HHF expanded into an internationally recognized organization that mobilizes volunteers and sponsors fundraising events that range from lemonade stands to galas. Through their efforts, research into GAN has grown exponentially. Before HHF began, only one doctor worldwide was studying GAN, but now scientists have developed gene-replacement therapy that they believe will save patents’ central nervous systems. They have started human clinical trials to test the treatment and seek a cure.

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