Aplastic Anemia & MDS International Foundation

BY: Sammi G |Dec 11, 2018

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Bone marrow failure disease can strike any person, of any age, any gender, or any race, anywhere in the world. 50+ people each day in the United States are diagnosed with a bone marrow failure disease. Most have never heard of their disease. About AA&MDSIF The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world’s leading non-profit health organization dedicated to supporting patients and their families who are living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides answers, support, and hope to thousands of patients and their families around the world. About bone marrow failure disease If you have a bone marrow failure disease, something is wrong with your blood-forming stem cells. AAMds1Aplastic anemia happens when the bone marrow stops making enough red blood cells, white blood cells and platelets for the body. Meet Clarabelle, an aplastic anemia survivor: “If I could beat aplastic anemia, then I can fight anything that life throws at me!”  http://www.aamds.org/patient-chronicles/clarabelle-ferguson   aamds2MDS is a group of disorders where your bone marrow does not work well, and the blood-forming stem cells in your bone marrow fail to make enough healthy blood cells. Meet Jim. He is an MDS survivor who feels blessed to have benefited from a clinical trial. http://www.aamds.org/patient-chronicles/jim-westmoreland   aamds3PNH is a rare and serious blood disease that causes red blood cells to break apart. Meet Alani, a PNH survivor:  "PNH doesn’t run my life, I lead my life with my PNH in it." http://www.aamds.org/patient-chronicles/alani-diaz   How Can AA&MDSIF Help You?
  • Personalized Support from Patient Educators Email help@AAMDS.org or call (800) 747-2820
  • Free Educational Materials Read the latest medical and treatment information. Get guidance for living well with a bone marrow failure disease.
  • Online Learning Center View and participate in patient education programs presented by leading experts.
  • Support Connection Talk to our trained patient volunteers who can share their treatment experiences and provide emotional support and understanding.
  • Regional Patient and Family Conferences Attend our conferences. Hear from leading experts. Learn from other patients.
  • Newsletters and eInsider Receive important medical and research updates. Read inspirational patient stories. Learn about our advocacy and awareness activities.
  • Clinical Trials Information Looking for a clinical trial? Let us help you.
What Else Does AA&MDSIF Do?
  • Funds medical research to find better treatments and cures for aplastic anemia, MDS, and PNH.
  • Advocates for increased federal funding of bone marrow failure disease research.
  • Promotes public awareness of bone marrow failure diseases.
  • Educates medical professionals on the most up-to-date information about these diseases, their diagnosis, and treatment.
Learn more about AA&MDSIF Visit the Aplastic Anemia & MDSI International Foundation www.aamds.org Learn more about bone marrow failure disease http://www.aamds.org/about Donate to the Aplastic Anemia & MDSI International Foundation http://www.aamds.org/get-involved/donate