Hope Unites Us.CNCF was founded in 2000 by the parents of a child lost to neuroblastoma. Today, it is one of the oldest and largest organizations in the U.S. dedicated solely to neuroblastoma awareness, education and research. Through fundraisers and incentivized giving, CNCF has funded more than $2 million in research critical to improving survival rates and treatment options for thousands of children battling the disease and its late effects. Our Medical Advisory Board is comprised of renowned research physicians who guide our funding decisions and help us identify the most innovate research projects. CNCF is the lead funder of the INRG Neuroblastoma Patient Database, the first ever to capture poignant research data from neuroblastoma patients around the world, such as information attained from tissue and tumor analysis. Our Parent Handbook is one of the most comprehensive resources on neuroblastoma available. Written by neuroblastoma parents, it decodes complicated medical terms, informs families about advanced treatment therapies and their potential side effects, and offers guidance on how to deal with relapse. Our annual Parent Medical Symposium brings families together from around the country so they can hear directly from doctors and researchers specializing in neuroblastoma. The two-day symposium is held in the Chicago area and sponsored and underwritten by CNCF. Attendees leave with knowledge of advanced treatments and clinical trials, and emotional support from a network of friends and families who understand what they’re going through.
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