“I was diagnosed with epilepsy when I was 13. From the beginning, I wasn’t ashamed or scared of my condition. I went through high school and started college like any other teenager. Epilepsy was always on my mind, and I wasn’t afraid to talk about it, but it was not necessarily a meaningful part of my life. That all changed when I found the Epilepsy Foundation of Greater Chicago (EFGC), an affiliate of the Epilepsy Foundation. I began volunteering at the EFGC, where I had opportunities to travel with the education director to share my story with others, work on event planning, and assist with programming for people with more severe epilepsy. Soon I began working with the Epilepsy Foundation. I joined their National Epilepsy Youth Council and attended several youth leadership conferences. As I worked with the EFGC and the Epilepsy Foundation, epilepsy took on a new role in my life. It was no longer just something I lived with and accepted- it was something that gave me passion and dedication. I learned to love having epilepsy and to love who I had become over the past ten years. I could not have done that without unconditional love of my family and friends, but I also could not have done that without the incredible programs and resources of the Foundation. The Epilepsy Foundation provides so much help, support, and hope to people with epilepsy, and their compassion has turned us into a community.
Thank you Epilepsy Foundation, and thank you Groupon for being a partner of such a great organization.”
When a person has two or more unprovoked seizures, they have epilepsy, which affects nearly 3 million people in the United States and 65 million people worldwide. This year, another 150,000 people in our country will be diagnosed with epilepsy. Despite all available treatments, four out of 10 people with epilepsy continue to experience uncontrolled seizures while many more experience less than optimal seizure control.
Myth vs. Fact
Myth: Epilepsy is rare
Fact: Epilepsy is extremely common. 65 million people around the world have epilepsy, with over 2 million living in the U.S. Every year in the U.S., 150,000 new cases of epilepsy are diagnosed. One in 26 people in the U.S. will develop it at some point in their lifetime.
Myth: Epilepsy is always treatable
Fact: Even with today's medication, epilepsy CANNOT be cured. Epilepsy is a chronic medical problem that for many people can be successfully treated. Unfortunately, treatment doesn't work for everyone. AT LEAST 1 million people in the United States have uncontrolled epilepsy. There is still an urgent need for more research, better treatments and a cure.
The mission of the Epilepsy Foundation is to stop seizures and SUDEP, find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies.
The Epilepsy Foundation, a national non-profit with more than 47 affiliated organizations throughout the United States, has led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures. The Foundation works to prevent, control and cure epilepsy through community services; public education; federal and local advocacy; and supporting research into new treatments and therapies. The Foundation works to ensure that people with seizures have the opportunity to live their lives to their fullest potential.
More About the Epilepsy Foundation:
Epilepsy Foundation Homepage
More About Epilepsy & Seizures
Donate to the Epilepsy Foundation
Connect with the Epilepsy Community