The Issue: Babies with Congenital Diaphragmatic Hernia
Roughly one in every 2,500 babies is diagnosed with a congenital diaphragmatic hernia (CDH)—a potentially life-threatening birth defect caused by a hole in the diaphragm—according to data from the Boston Children’s Hospital. When the diaphragm fails to fully form, organs from the abdomen can move into the chest, preventing lung growth. While some babies are diagnosed with CDH during a routine ultrasound, it is also diagnosed after birth when a baby has difficulty breathing. Families affected by CDH often see their child go through long hospitalizations and other medical issues. With the help of care tote bags and information about treatments, CHERUBS hopes to ease the stress families face.
The Campaign: Sending Totes to Hospitalized or Sick Babies
All donations to this Grassroots campaign will be used by CHERUBS to provide care totes for families expecting a child with a congenital diaphragmatic hernia (CDH) and families with a child currently in the hospital. For every $500 raised, Cherubs can distribute care totes to 10 families. Each tote includes items such as onesies, disposable cameras, stuffed animals, and other infant-care products, plus information about CDH for the parents and family.
CHERUBS has one goal: to help families affected by congenital diaphragmatic hernia (CDH). By researching and raising awareness for this rare birth defect, CHERUBS's volunteers, as well as its board of CDH survivors, parents, grandparents, doctors, and nurses, help search for its cause, prevention, and best treatments while supporting families dealing with CDH. Ultimately, the organization strives to provide the most accurate, timely information possible for parents so they can make educated decisions for their babies. The CHERUBS H.O.P.E. (Helping Other Parents Expecting) tote-bag program, meanwhile, collects donated care items along with information for those who are expecting babies with CDH or who already have a hospitalized infant. In 2012, CHERUBS distributed more than 300 such totes to its members, which include more than 4,000 families in all 50 states and more than 60 countries.
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